Meet Aylin and Isabella

12 January 2017

This year for our 5th annual 5K and Birthday Bash, we are honoring local sisters who both have a CHD called Tetrology of Fallot. Please join us this year in celebrating Hayden's 5th birthday and these two sweet heart warriors!

Details and registration for the 5K can be found on our website.

Meet Aylin and Isabella

'These are my 2 precious little girls, it has been a very long and rough road but I am so grateful to God to have them with me.
At my 4 months of pregnancy, is when I discovered their problem and many questions ran through my mind. It was a difficult decision but I listened with my heart and knew I was not wrong.
Just like that I continued the difficult journey with my little girls. I hung on with hope and faith without listening to what people had to say because at the end I knew that these moments of so much suffering, pain and events of those days in the hospital would only be memories.
Aylin Conil is 4 years old with Tetrology of Fallot, enlarged pulmonary valve, tracheostomy with life support and G-tube for nutrition. She has had 2 corrective heart operations. She is a super happy, loving and friendly little girl.
Isabella Conil is 7 months old. She was also born with Tetrology of Fallot. She had corrective heart surgery at 4 months of age. Isabella is healthy, happy and always smiling.'
~ Yenni, Aylin + Isabella's mother

Hayden's Heart Monthly Beat - JANUARY

02 January 2017

Looking Back at December

 The last of our ‘Holiday Cheer’ care packages were delivered the middle of December- thank you again to ALL of our supporters who helped make these care packages happen! 

We sent out 75 packages total to heart families in the cardiac units at Children’s Hospital of Philadelphia, Children’s Hospital of Pittsburgh, Children’s Hospital of New York, Geisinger Medical Center, and Boston Children’s this holiday season!

Shout out to Be The Difference in Jersey City, NJ for donating 10% of their profits each month to Hayden’s Heart! We are grateful for their support this past year!

Hayden’s Holiday is a grant given to bereaved heart families who have lost a child in 2016. With the loss of a child, everything that once felt safe can so quickly feel overwhelming and unfamiliar. Having a few days to get away with those you love the most can often provide such a sense of calming even during such a devastating storm.

Each grant has a value of up to approximately $1000 per family and those awarded will be sent on a family getaway. Five bereaved heart families will be granted a holiday for 2017.

Please visit our website for more information on how to donate to this project or to submit an application. Deadline is January 31 2017.



As we start a new year, I want to take this opportunity to personally THANK YOU for the unconditional love and support you have given Hayden’s legacy in 2016. Each year we grow and are able to do more in his name and it is because of your dedication that we are able to do so.

Wishing you and your families a wonderful start to 2017! We look forward to sharing with you all the GOOD that stems from your love and generosity to Hayden's Heart in the coming year!!

3.12.12 - 8.16.12

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