This is the third 'throw back thursday' blog entry- another update from an appointment at CHOP- the photo above is from some of the hearts that were made by people all over the country praying for our family. It was so incredibly uplifting to come home to a mailbox with hearts each day- at one point, every room on our first floor had hearts, all the way up our stairs and to the second floor! It was breathtaking!!
"Sorry for the delay with our CHOP update...the last
24 hours have been exhausting and I was definitely fighting a battle with
'Debbie Downer'...I kept attempting to post an update but found myself being
less hopeful and knew I wanted to be in a different state when sharing more of
our story! Anyways, I apologize for not updating sooner...yesterday was
basically more of the same. Hayden's heart is still not growing but they are
still not completely ruling out that it can grow. It sounds more likely that we
will not know until he is born and his surgery will most likely happen later
than we were originally expecting. From what we have read from other families,
it seemed typical to have the first open heart at day 1-2 of life, or as soon
as the baby is stable. With Hayden, they will most likely need to observe him
for a few days to see what his heart does outside of the womb. Even though this
obviously delays things a bit, I was happy to know this so that when the time
comes, we can prepare to be pushed back a few days. So, please keep praying for
Hayden in hopes that our next appointment on February 14th (ironic??) his heart
shows some positive changes!! THANK YOU!!"
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