FIGHTING THE HEART WAR WITH LOVE.

'fbf'- road to recovery 3.31.12

18 April 2014


OOPS! Forgot to post a TBT yesterday so here's a flashback Friday instead from March 31, 2012~


ROAD TO RECOVERY!
Hayden is recovering well in the CCU (Cardiac Care Unit) of CHOP!  We moved here last Tuesday and he has remained stable- working on increasing the amount of feeding through mouth, the rest through a tube. Rob and I had a class on how to insert the feeding tube and how to feed and administer medicine through the tube. As of now, we are basically waiting to make sure his belly is comfortable with the amount of milk he is receiving each feed and as it stands, if everything continues to go well and run smoothly, we are looking to be discharged the beginning of the week! We are equally excited as we are scared but with all the information and hands-on help CHOP is providing in terms of how to care for him, we know we will do just fine. Hayden's care will be a full time job for me from now at least until his second surgery. The months in between are the most critical. Typically HLHS babies have their second surgery around 4 months of age but they tell us we will see signs from him when his heart is in need of the second stage and further reconstruction. 

We are excited to introduce Hayden to our friends and family and will post some visitor guidelines the hospital has given us when we are finally home!!  As always, thank you for continuing to support us in this journey! 

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DEDICATED TO HAYDEN JETER DORSETT
3.12.12 - 8.16.12

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